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Yuna Lee, who has a rare defect on the FOXG1 gene, listens to a teacher read at Bridlemile Elementary School in Portland, Ore., May 25, 2017. Yuna’s mother, Soo-Kyung Lee, who had worked with the FOX family of genes for years, began doing what she was uniquely positioned to do: aiming her research squarely at her daughter’s disorder. (Ruth Fremson/The New York Times)