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Spina Bifida Patient Rises Above and Beyond Daily Challenges

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ROANOKE RAPIDS — Spina bifida is typically associated with babies and young children.What happens to people who grow up with the birth defect?

Years ago, people withspinabifidawere born with a medical mystery. Today they benefit frommedical breakthroughs.

Staci Hawkins, 28, does not let her disability slow her down.

"I really don't consider myself different from other people,"I walked across the stage when I graduated from high school," she says.I can do whatever I want to do."

Hawkins was born with spina bifida in 1972. It was a time when little was known about the birth defect.

"I wish they were able to find out when I was born that I had spina bifidaand they could have done something about it then," she says.

Hawkins says she was not expected to live. "They told [my father] that he could come back and pick me up in a day ortwo because I would not live over two weeks," she says.

Her mother, Frances, says she and her husband prayed for a miracle.

"It was devastating, because we were extremely happy over having a child. We just refused to give up," she says. After several operations and two and a half months in the hospital, Hawkins' parents brought their baby home.

"In general, things are better than they were previously," says Dr. Richard Toselli of the UNC Spine Center.

Toselli says medical research surrounding spina bifida has come a long way. Research has lead to treatments that have improved the quality of Hawkins' life.

"With good quality care, especially associated neurologically, as well astheir bladder, these patients are living pretty normal lives," he says.

Hawkins takes care of herself. She has worked most of her adult life and drives a car. Like many people with disabilities, she has also faced discrimination.

"Some people don't treat you like other people do, like most people do,like your family and friends do," she says.

Hawkins wants to help other families cope when a child is born with adisability.

"Treat your children like everybody else. That's what my parents and familyhave done," she says.

Francis Hawkins says her daughter has always been an inspiration toothers. She is also a source of hope for other families facing the samestruggle today.

About one in 1,000 children are born with spina bifida. The biggestbreakthrough has been research that shows takingfolicacidcan prevent 70 percent of the cases.

TheCentersfor Disease Controlrecommends that all women between the ages of 13and 50 take a daily multi-vitamin with folic acid. Folic acid can also befound in green, leafy vegetables and orange juice.

 Credits

Amanda Lamb, Reporter
Joe Frieda, Photographer
Michelle Singer, Web Editor

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