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11:00 p.m. • 6-18-13

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Comments :: Vision screening helps identify child's rare eye condition

5 Comments


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Sara Katherine had a screening at 2 & showed no signs of any problems. The next year at 3, a problem was detected, possible iris adhesions. I didn't know where to turn so I went to the internet and it kept coming up Duke & Dr. Laura Enyedi. I called & had an appointment in 2 weeks & did not need a referral, just determination to have my daughter checked. Dr. Enyedi told us Sara Katherine was 2 weeks from losing her sight. She could not promise she would not lose her sight but that she would fight to keep her sight & she has kept her word. Sara Katherine does not have any other health problems & we do not know why her immune system decided to attack both her eyes. Now the Uveitis is only in the left and the Remicade(IV)is helping. Then she developed glaucoma & that is where Dr. Freedman came in & did a terrific job with her surgeries. Sara Katherine has gone from 20/200 to a corrected vision of 20/20 w/glasses. I can not say enough good things about Duke & PBNC.

Mom

Duke Eye Care Center-Dr. Enyedi and Dr. Afshari A+ doctors. My daughter had the stray left eye. Nailed her problem right from the get go. All she need was glasses. First went to UNC they told me she was too young for glasses at the time. I was like what. I just saw a child younger than my child with glasses on! Duke is the best!

Prevent Blindness found a problem with my sons vision when they screened him at his daycare. He was 4 yrs old. We immediately went to an opthamologist and his vision was corrected through patching and glasses. It could have progressively gotten worse if it hadn't been caught at such an early age!

Thank you Prevent Blindness NC!!

Well I also had pars planitis since I was 23 and it wasn't "cured" until almost 30 years later (back in 2004) by a retinal specialist in private practice. I had gone to all the usual places, Duke Eye Center, UNC, etc., they didn't know what they were doing. Each doctor had their own (very opinionated) attempt at a cure, usually using some kind of experimental procedure or medication. All these great doctors certainly had no clue and after enough of the institutional doctors who only want to experiment, I happened upon this retinal specialist who had close ties with an optometrist that I went to. Having an optometrist on my side really helped because they seem to be able to translate, interpret, and even sanity-check some of these eye specialists who all think they are Gods. My retinal specialist performed cryopexy and actually fixed the problem with no side-effects and no recurrence. I would never do another eye procedure without an optometrist backing me up.

My son was diagnosed with pars planitus a form of uveitus when he was 6. Dr. Sharon Freedmon was his doctor. I just wanted to let the family know that it gets better. My son is now 18, and has no flare up since he was 13. The IV infusion were the thing that finally worked on him. Duke has a bunch of great eye doctors.

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