Q&A: Cary-based National Autism Network launches social network
Autism Spectrum Disorder affects 1 in 88 children, according to the Centers for Disease Control and Prevention. To help families, the Cary-based National Autism Network launched a new social network design specifically and solely for the autism community.
Posted — UpdatedI checked in by email with Cari DeCandia, the network's director of business development and mom of a three-year-old, to learn more about what they're doing to help families find answer and make sense of a diagnosis.
Our goal is to connect people affected by autism and to help educate – to assist the autism community by providing thousands of hours of research in one place.
NAN also provides family members with a unique opportunity to connect with other siblings, grandparents and other family to share experiences and gather support.
Individuals on the spectrum are able to connect and build a network of other members who share similar interests. NAN also provides them the opportunity to connect locally and/or across the nation.
Another unique feature of the social network is the ability for parents to connect with providers. Prior to NAN, parents would spend hours talking to and updating the different providers for their child – from behavior analysts to speech therapists to occupational therapists.
Naturally, parents want their child’s providers to be well-informed and all on the same page, but time and again providers have had to decline Facebook invitations and other requests to connect from parents because of ethical and privacy concerns. With the rise of social media, we knew there had to be a better way to connect the autism community. That is when we came up with the idea of using social media to connect parents, providers, and individuals on the spectrum in a safe, HIPAA secure environment. The end result is time savings for parents and better care for the child.
Parents will also have the opportunity to create the HIPAA secure private network for their child. The child’s private network page is similar, but the page also includes information such as their diagnosis and types of treatments and therapy in which the child is currently involved. The last step is for the parent to invite the child’s providers as well as any family members involved in his/her care to be a part of the private network.
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