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11:17 p.m. • 5-25-13

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Published: 2013-01-02 22:52:00
Updated: 2013-01-03 00:15:13

Alzheimer's patients wait on appeals for personal care services


Alzheimer's patient
Alzheimer's patient
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People with dementia or Alzheimer's disease living in special facilities in North Carolina can retain current levels of personal care services in the new year while their custodians appeal decisions to scale back Medicaid support.

A couple thousand residents of special care units at assisted living facilities will retain existing levels of Medicaid-funded care for things like getting dressed or taking baths – for now. But they must appeal by the end of this month for higher existing service levels to remain.

Ron Reed's mother, Delsie Reed, was diagnosed with Alzheimer's in 2000 and currently lives in a special care unit at an assisted living facility. He said she needs 160 hours a care per week, but Medicaid will only pay for 80 hours.

Reed is waiting to see if his appeal gets approved. If it doesn't, he said he doesn't know how he'll care for his mother.

"If they should lose an appeal, the provider may have to look to discharge them," said Peggy Smith, spokeswoman for the North Carolina Assisted Living Association. "To discard them at their time of greatest need and vulnerability, we cannot accept as a society."

The new monthly caps on care and rate reductions were scheduled to take effect Jan. 1, but federal regulators agreed to give patients an extra month of Medicaid-funded care. State Health and Human Services Secretary Al Delia said the delay could give lawmakers and Gov.-elect Pat McCrory time to revisit changes that mean less money for facilities providing the services.


18 Comments


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Latest Comments
doser: "Did anyone do the math on this request."

Maybe the math on the hours is off, but you have obviously never had to take care of anyone who has been cursed with this illness/disease or you would understand the request. Grand Union stated it was a "treatable disease", show me that evidence. I watched 2 beautiful people who's lives were destroyed by this disease. Nothing prescribed for them had any affect on the process. Read "The 36 Hour Day" for more indepth info on the subject.

who wants to see an 82 year old thrown into the street?- cheapskate

I'll give you a hint. First initial is G, last initial is P, middle initial is O...

Its time the US keeps its money(ie.. our tax dollars)at home. The trillions that are being spent on the UN and other countries could be used to built more care facilities. Alot of these people worked their whole lives and now are being kicked to the curb so some foreign country can rebuild their economy.

mountainlover, you may have misunderstood my post. I attempted to convey that people who depend on govt money are not free. I'm not saying you personally. Too often people automatically look to the govt, not to themselves, for their needs. The govt goes out of its way to foster dependence.

You're correct. I have not cared for an Alz/dementia patient. But I have been the sole caretaker of a loved one through his final illness and it wasn't swift or pretty. And I held down a fulltime job as well as a part time one. It haunted me and it changed me. Sorry for what you're going through.

Morrigan: There is one thing that I know for a fact and that is that you have never had to care for someone who has dementia or Alzheimer's for any period of time. If you had, you would not be making comments like you just made. There is no "freedom" when "the government" is paying the tab to take care of someone that you love that is housed in a nursing home..not if you know the meaning of love. And there is definitely no "freedom" when a person who already has a job is called upon to take care of someone with this condition; in all likelihood the caregiver will wear out before the patient does. It is not a question of obtaining greater freedom. It is a question of surviving and maintaing ANY sanity and peace of mind. You are correct in one thing; it takes a very cold person to bring the issue of politics into this discussion period.

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