Health Team

Raleigh walk aims to raise funds and awareness for lupus

Posted April 19, 2012
Updated April 20, 2012

— An annual walk hosted by the Lupus Foundation of America this Sunday, April 22, aims to raise funds and awareness for a disease that is difficult to diagnose and can damage any organ in the body.

Lupus is a chronic autoimmune disease whose symptoms vary from person to person. Because symptoms are varied, doctors can sometimes misdiagnose the disease.

Cyndi Horner, an 18-year-old from Raleigh, suffered from joint pain and severe fatigue before doctors confirmed she had lupus using an 11-point criteria system and lab tests.

"I knew something was wrong with me. It was my sixteenth birthday and I couldn't get out of bed," she said.

Horner has been undergoing treatment with pain medication and an antimalarial drug that is also used for lupus.

Cyndi Horner, 18, suffers from lupus Raleigh walk aims to raise funds and awareness for lupus

Christine John-Fuller of the Lupus Foundation of America said that because lupus is difficult to diagnose, it is difficult to treat as well. The FDA approved the first drug specifically made to treat lupus, Benlysta, last year.

Another important part of Horner's treatment is the strength and support she receives from other lupus patients. She has formed her own fundraising team for this Sunday's walk, and at the time of publishing, she has raised $3,440 for team "Cyn-a-buns."


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  • christinejohn Apr 20, 2012

    STREMS709 - We never like to hear that someone is going through the discovery process of a possible lupus diagnosis. I represent the Lupus Foundation of America, Piedmont Chapter, which serves individuals living with lupus in NC. I encourage you to reach our to our office to speak with our Patient Services department regarding what resources and support we might have for you & your daughter...even in the diagnosis process. Reach us at or 877-849-8271.

    BEEN THERE ONCE - If your daughter lives here in NC, let us know how we can help. We've got extremely helpful info like materials & videos on Lupus & the Kidneys for example. Reach us at or 877-849-8271. If your daughter lives outside of NC, she can find her local LFA Chapter at

    MALCONTENT - You are absolutely right. It is not something to ignore.

  • Been there once Apr 20, 2012

    After 2 years of Cellcept, my daughter is finally ready for a maintance dose. She will take the maintance dose for 1 year and then be reevaluated. We knew for about 10 years that Lupus might rear it's ugly head and on my daughters 29th birthday it did,attacking the Kidneys as well as pain and swelling of the joints. I was excited to hear about the new drug, but then I learned it is not recommended for Lupus Nephritis. A young lady who 2 years ago ran 5 miles and day and biked, is now taking physical therapy in the hopes she can someday return to her bike. I have a brother with an autoimmune disease and recently heard of a distant cousin with Lupus. Find a support group. It helped her. God bless you all.

  • Malcontent Apr 20, 2012

    Lupus isn't something to ignore. I know someone who has it. It put her in the hospital several times for various things. Bad, bad things. Sreams709, I wish you and your 17 yr. old the best.

  • sreams709 Apr 19, 2012

    Taking my 17 yo. to a rheumatologist Tuesday, 4/24. We have a history of this in our family and because of her medical history, a blood test for this disorder has been performed several times. I do not want this to be her diagnosis but after your story, I'm all but convinced that it will be. "Pain meds don't work, they just make me groggy,"...."She's a hypochondriac,"....joint pain for many years, low grade fever for the past month (after a bout with the flu), two visits to Wake Med ER in two weeks because of pain, several visits to our general practitioner, several days of school missed in the last month. Anyway, the point to all this was THANK YOU Dr. Mask and Cyndi. I know she's not faking an illness and you have both helped me continue this battle with the powers that be. Thank you so much..

    Stephanie Edwards