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migraine support group: profile ↓

migraine support group


created: Apr. 3, 2009

golo url: migrainesupport.golo.com

members: 18

group owner: NCMOMof3 | Contact

membership: open

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announcement
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I received this email and was asked to forward it to the group.  I am posting it here for your information.  Please use your individual discretion as I am in no way vouching for this individual.  I am just passing on the information.  Please do your own research and participate as you feel comfortable. 

 

here is the email:

 From:             Ray <rpmccorm@ncsu.edu>
Screenname:       rpmccorm
Message:
  I am an MBA student at NCSU working on a team project focusing on an
innovative form for treating migraines.  We need to interview 10-15 migraine
sufferers in order to get an understanding of how the innovation might satisfy
their needs.  We were wondering if your group would be a source for contacting
anyone willing to participate in this study.  All information gained would be
considered strictly confidential.

Your help is greatly appreciated.

Thanks.

Ray

 

 

 

 

IMPORTANT:  This group is not intended to take the place of your health care professional.  If you or your loved one suspect migraine, your first step is a diagnosis by a competent physician.

Do not begin, stop, increase, or decrease any medication without first consulting your doctor.

Please do not take any prescription medication not prescribed for you by your physician.

This group is for information and support purposes only


about migraine support group

This group is here for the support of people that suffer from migraine or have loved ones that suffer from migraines. 

Please come in and share with us your stories, your tears, your triumphs.  What are your triggers, what helps, what doesn't.   

 






Rev. RB aka Troll Magnet

2tearsnabucket
q0..0

Anna Marie
ncstate
summermay




my favorite migraine sites (posted Apr. 5, 2009)
mayo clinic article (posted Apr. 5, 2009)
my migraine story (posted Apr. 4, 2009)


ncmomof3 created a group image gallery.
migraine drawings
Apr. 3, 2009

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I didn't have any tingling in my feet until I switched to the generic topomax now I do. Sodas still taste flat but the mt dews are better on the generic. I'm still avoiding 99.9% of alcohol as per doctor's orders. I did have a mixed drink the other night but after only half the drink, I started to feel sick so stopped drinking it. I did have one of the jello shooters at Sessy's and it was fine but I only had one. I'm only on 100mg.

We'll see what the new doc says tomorrow. I'm having more migraines and we haven't even gotten into hurrican season,,and they are more severe

I used to have migraines quite often (about 1 a week) but they have eased off some. I still get them but not enough to require a prescription. Can anyone suggest anything that helps get rid of one without a prescription? I usually take some excedrin migraine, put a cold washcloth on my forehead and lay down in a dark room. Is there anything that will work better. Oh and thank you NCMom for mentioning this group in a blog today, I didn't know it was here until I saw your post.

" wife, what do you take for breakthrough migraines? besides the topomax (generic) what to you take? "

@mom- usually, i take excedrine migraine, if i can no longer stand it, i take percocet, a cool rag or ice pack and go to bed.

i've had relpax and imitrex- after the tightening of my chest & throat, i do not take them anymore! no more triptan meds for wife...

I remember you had said that before Wife, no triptans. Have you tried the fiorinal/fioricet type of meds? that's why I asked. They may help and not trigger the tightening in the chest that the triptans did. Midrin tends to make your heart race so that probably won't be a good choice

Sansa, excedrin migraine is good as it has the "migraine cocktail" = acetaminophen, aspirin, caffeine. Usually works good. Also, I add 2-3 benadryl for the sedative affect,,,and warm cloth works better for me

another thing that will help is pressure points,,someone that will massage your feet, as there are trigger points in the soles of the feet. And there are 2 on the back of the next as well that work for me.

I saw a new neurologist today and I am IN LOVE. He actually took the time to listen to me instead of wanting to reinvent the wheel with my migraines. He has increased my topomax, gave me some samples of relpax as my insurance will only allow 8 a month and some months I need more some not as many, he gave me a script for pain meds and anti nasaue to keep me out of the emergency room as well

I think I'm going to keep him

phenergan mom?

great to hear about the neurologist! i'm glad you're gettin on track. good luck, though, with the relpax...- have never tried anything of the florinal/ fioricet meds- will study up on them...

Mom, fiorinal/fioricet is what I take for pain, as well as imitrex at the start of one. (Usually start with 50mg) Doc told me to be careful with the Fiorinal, cause it can be habitual and Not to take BCs or the like with it.

On the good side of it, it does not have the reverse headache that some prescript pain meds give. That's what I like about it. It does the job, but it will not give you a headache once out of your system.

OY, good luck with that Mom!

I've taken fiorinal and fioricet before for pain and you do have to watch it because it can be habit forming. No BC powders with it because it contains alot the same meds, it is a mixture,,both are very similar,,,the -cet and the -al just very slightly different compositions. They worked ok on my headaches but not anything to write home about

Imitrex never worked for me, neither did amerge. Relpax is great for most of mine. All 3 are triptans , just slightly different formulas

And yes, Wife, phenergan. I usually keep a prescription for that, even though the relpax has an anti naseau component, sometimes it's not enough. But I had run out and my GP wouldn't refill

And yes, Wife, phenergan. I usually keep a prescription for that, even though the relpax has an anti naseau component, sometimes it's not enough. But I had run out and my GP wouldn't refill

Good Grief, why wouldn't your GP refill? I take strong pain meds for the cancer pain and they cause nausea all the time so I keep phenergan around always. I tried the other nausea med, can't remember the name right now, but it didn't work as well. The strong narcotics are why I do get the migraines sometimes, especially if I have breakthrough pain and have to take my second pain med to help the first one.

Sansa, I was seeing a group and my GP would change every 2-3 years as the intern would graduate out of the practice but I loved the program,,,only problem, with my migraines, I had to start from ground zero with each new GP and they would want to change my meds, even if they were working. So 2 years ago, I left my family that practice and I went with a doctor my friend recommended. He is great with everything but migraines. He is not familiar with migraines at all and so afraid to write a prescription for anything that has to do with them so when my meds ran out (I don't take hard core stuff very often) he wouldn't write me anything. He didn't mind refilling the daily stuff but the phenergan, the pain meds, etc, he refused to fill at all. So I finally asked to see a specialist because I entering another cycle where the headaches are bad again and no way he can manage them at this point if he won't even write a phenergan script

I've been away for a few days. I took some time off to get some work done (sounds strange, I know). Just wanted to check in

All current members are able to do blogs. Any new members that join, will be given the ability to do blogs as well, give me a day or two. If new members will go back and read the blogs posted, there is some great information,,also the comments posted will provide some good information as well, some ways to treat migraines that may not be main stream. Things that have worked for some of us in here and things that have not.

THESE STORMS ARE KILLING ME!! I know we need the rain, but my head is truly gonna explode. I talked to my sister yesterday, she's having the same problems. I know I've got get thru it, and I'm not expecting a miracle...just wanna vent I guess. My meds work to a point....I hope the storms are gone for a few days anyway....I missed my nieces Sweet 16 last night because of a headache. She got a blk BMW!

Shoe, this is the place to vent,,it's what this group was made for. I feel your pain. Hubby looked at me last night and told me he thought we were drifting away. I've had a headache for over a week. By the time I get through my day, all I want to do is just lay on the couch. I can't sleep really, just sort of drift in and out. So I just sort of lay on the couch, I have the computer, the tv, he's been working but was off last night, and wanted to go somewhere,,I just want to lay there. I think the meds are draining as well. It's the low pressure systems that are killing us.

WEEKLY UPDATE: anyone else having trouble this week with migraine pain?

Just wanted to let everyone know the group is still open. I check in here every few days. If anyone wants to vent, ask a question, whatever, please feel free to do so. This group is open to all, and there will be no drama here. Everyone is welcome

hey mom- hope you and everyone are doing well!!!

my doc finally sent me to a neurologist here in fayetteville- my topomax was not working- not even up to 300mg, the neurologist has now put me on inderal- which is an old blood pressure med., but has been proven to work for prevention of migraines- i think it may be working.... (knock on wood)--

wife, I hope it continues to work for you. I was on Inderal for a number of years. My body tends to build up a tolerance for meds after awhile

wife, how is the inderal working for you? The doc is holding me at 150 on the topomax and instructed me that part of my problem appears to be that when I have a migraine I do not allow myself the time I need to rest. I am expecting to take a pill (the relpax) and have it work miracles. I take the pill and keep going. While the relpax will take the edge off and allow me to stay on my feet, it is not a miracle drug. With some migraines, I will need to still lay down until the headache is completely gone. By not doing so, I am setting myself up for a major headache, that will linger for days.

Instead, I work through it, lay down at night and then get back up in the mornings, still with the headache, take another relpax, work through my day, go to school, do homework, then go to back. I have placed myself in a vicious cycle.

yeah yeah,,and when is cloning going to be perfected?

hey mom- the inderal seems to be working well. i am taking 80mg a day. whereas i was taking 200 topomax and it did nothing...

you really MUST try and change your routine, if just a little, just enough to allow yourself SOME of the rest that you need!!! do you hear me talking or do i need to shout? :)) take care...

lol, Wife, I hear ya. It's not so much changing the routine as it is finding the time to actually go to bed when a migraine hits. I just don't really have that kind of time because they hit so ofte. But he explained that by not taking the time, I'm setting myself up for failure. So I guess it's a catch 22. I either take the time now to rest with each headache and, in doing so, have less headache, or keep on going and have more and more, and have them last longer

either way, I'm screwed

I'm glad the inderal is working, that's great!!!!!

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