migraine support group: profile 
migraine support group
created: Apr. 3, 2009
golo url: migrainesupport.golo.com
members: 18
group owner: NCMOMof3 | Contact
membership: open
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I received this email and was asked to forward it to the group. I am posting it here for your information. Please use your individual discretion as I am in no way vouching for this individual. I am just passing on the information. Please do your own research and participate as you feel comfortable.
here is the email:
From: Ray <rpmccorm@ncsu.edu>
Screenname: rpmccorm
Message:
I am an MBA student at NCSU working on a team project focusing on an
innovative form for treating migraines. We need to interview 10-15 migraine
sufferers in order to get an understanding of how the innovation might satisfy
their needs. We were wondering if your group would be a source for contacting
anyone willing to participate in this study. All information gained would be
considered strictly confidential.
Your help is greatly appreciated.
Thanks.
Ray
IMPORTANT: This group is not intended to take the place of your health care professional. If you or your loved one suspect migraine, your first step is a diagnosis by a competent physician.
Do not begin, stop, increase, or decrease any medication without first consulting your doctor.
Please do not take any prescription medication not prescribed for you by your physician.
This group is for information and support purposes only
about migraine support group
This group is here for the support of people that suffer from migraine or have loved ones that suffer from migraines.
Please come in and share with us your stories, your tears, your triumphs. What are your triggers, what helps, what doesn't.
my favorite migraine sites (posted Apr. 5, 2009)
mayo clinic article (posted Apr. 5, 2009)
my migraine story (posted Apr. 4, 2009)
ncmomof3 created a group image gallery.
migraine drawings
Apr. 3, 2009
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Let me know bout the new "babies", moderator
GOLO member since July 20, 2007
May 5, 2009 12:37 p.m.
GOLO member since August 13, 2009
May 5, 2009 4:11 p.m.
GOLO member since July 20, 2007
May 5, 2009 10:14 p.m.
GOLO member since August 13, 2009
May 6, 2009 4:03 p.m.
GOLO member since July 20, 2007
May 7, 2009 8:05 a.m.
GOLO member since July 20, 2007
May 7, 2009 8:05 a.m.
no more imitrex for me... as it causes chest pains and tightening in my throat- severe the last time i took it (just like relpax, which was the reason for my stopping it and going to imitrex). so, with that happening, it's a no-no to treximet, as well.... my dr says we can continue to increase the topomax but absolutely no more imitrex or treximet!
sooo, back to square one. all i can do now is hope that the topomax holds off these migraines or at least, if I do get an attack, my other pain medication will relieve it.
GOLO member since December 14, 2007
May 7, 2009 4:17 p.m.
GOLO member since August 13, 2009
May 8, 2009 8:47 a.m.
I need to find a pain reliever that is NOT in the triptan family, i guess. so all you migraine sufferer experts, get to work and send suggestions my way. ~ ~ thanks
GOLO member since December 14, 2007
May 8, 2009 12:06 p.m.
GOLO member since August 13, 2009
May 8, 2009 7:57 p.m.
wife,,have you tried fiorinal, fioricet, or midrin for your migraines?
GOLO member since July 20, 2007
May 9, 2009 11:31 a.m.
for pain relief, some drugs that are outside the triptan family that I've had success with are ergotamine type such as cafergot, ergot, DHE (self injected), and migranal (nasal spray). Midrin is also good but it made my heart race. It contains tylenol and some form of sedation but I was on it for years. Fioricet and Fiorinel are both pretty good as well. Problem I have is my body seems to build up a tolerance to meds after awhile. For preventive measures you have Topomax and drugs like it, then I've been on inderal, elavil, pamelor, verapamil, and sansert. All without much luck. you can also try Depakote, Timolol, and others in those class of drugs.
Good luck with the abortive meds. Most will cause a tightening of the chest as they constrict your blood vessels
GOLO member since July 20, 2007
May 9, 2009 10:13 p.m.
GOLO member since July 4, 2007
May 11, 2009 11:53 a.m.
GOLO member since July 20, 2007
May 11, 2009 12:17 p.m.
GOLO member since July 20, 2007
May 11, 2009 12:18 p.m.
GOLO member since December 14, 2007
May 11, 2009 12:50 p.m.
GOLO member since December 14, 2007
May 11, 2009 12:51 p.m.
GOLO member since July 20, 2007
May 14, 2009 10:38 a.m.
GOLO member since March 6, 2008
May 14, 2009 7:22 p.m.
GOLO member since March 6, 2008
May 14, 2009 7:28 p.m.
GOLO member since July 20, 2007
May 15, 2009 11:47 a.m.
GOLO member since March 6, 2008
May 15, 2009 8:10 p.m.
GOLO member since August 13, 2009
May 18, 2009 8:02 a.m.
I can tell and Blah can see a difference in me with the one pill less already. I'm not as tired as I was and still have not had a migraine yet, but, that sinus problem I had is still there. The little bit infection I had moved deeper down towards my gum area where I had a root canal done and is given me a fit. Been taken all kinds of pain stuff to ease it off, but still hurts like a mofo and kept me up most of the night. I know I'm whining, besides, I'm allergic to pain.
GOLO member since March 6, 2008
May 18, 2009 10:01 a.m.
GOLO member since August 13, 2009
May 18, 2009 10:18 a.m.
GOLO member since March 6, 2008
May 18, 2009 10:21 a.m.
GOLO member since August 13, 2009
May 18, 2009 10:27 a.m.
Moderator, I'm so sorry about the tumor. How scary! Please be careful. I know all about putting off treatment and tests due to $$ but please take care of yourself
GOLO member since July 20, 2007
May 18, 2009 11:30 a.m.
GOLO member since August 13, 2009
May 18, 2009 12:11 p.m.
http://organizedwisdom.com/Category:Migraine
GOLO member since July 20, 2007
May 20, 2009 8:12 a.m.
Anyone else have that problem?
GOLO member since July 20, 2007
May 29, 2009 8:26 a.m.
GOLO member since August 13, 2009
June 2, 2009 9:13 a.m.
GOLO member since July 20, 2007
June 3, 2009 6:56 p.m.
goloncmomof3@aol.com
GOLO member since July 20, 2007
June 3, 2009 11:05 p.m.
seems like my tingling side effects from Topomax had eased off, then the medication switched to generic Topirimate and now the effects are starting to regain strength again, as if I've just began to take it. I guess I figured it'd be like continuing on with Topomax, hmmm.....
into the 5th month of the medication, am now starting to also see some of the memory effects- as in figuring numbers/ amounts in my head. THIS IS NOT GOOD, IN MY LINE OF WORK!
GOLO member since December 14, 2007
June 6, 2009 8:26 a.m.
GOLO member since July 20, 2007
June 6, 2009 11:24 a.m.
GOLO member since August 13, 2009
June 7, 2009 6:26 p.m.
GOLO member since July 20, 2007
June 9, 2009 6:02 p.m.
GOLO member since July 20, 2007
June 18, 2009 4:56 p.m.
How has everyone else been??
GOLO member since July 20, 2007
June 18, 2009 4:57 p.m.
NOT GOOD...
GOLO member since December 14, 2007
June 23, 2009 9:06 a.m.
GOLO member since July 20, 2007
June 23, 2009 5:52 p.m.
GOLO member since July 20, 2007
June 23, 2009 5:52 p.m.
GOLO member since March 25, 2009
June 25, 2009 2:54 p.m.
my dosage has now been increased from 150 to 200 mg daily. dayummm, my feet will tingle now! we'll see..........
how's everyone else been?
GOLO member since December 14, 2007
July 3, 2009 12:19 p.m.
GOLO member since July 20, 2007
July 3, 2009 3:36 p.m.
GOLO member since July 20, 2007
July 6, 2009 9:26 p.m.
GOLO member since December 14, 2007
July 8, 2009 9:09 a.m.
GOLO member since July 20, 2007
July 8, 2009 4:50 p.m.
My sinus have not really gave much trouble, so I have not gone to an ENT yet. Just sticking with the OTC when I need it.
GOLO member since March 6, 2008
July 8, 2009 6:24 p.m.
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