migraine support group: profile 
migraine support group
created: Apr. 3, 2009
golo url: migrainesupport.golo.com
members: 18
group owner: NCMOMof3 | Contact
membership: open
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I received this email and was asked to forward it to the group. I am posting it here for your information. Please use your individual discretion as I am in no way vouching for this individual. I am just passing on the information. Please do your own research and participate as you feel comfortable.
here is the email:
From: Ray <rpmccorm@ncsu.edu>
Screenname: rpmccorm
Message:
I am an MBA student at NCSU working on a team project focusing on an
innovative form for treating migraines. We need to interview 10-15 migraine
sufferers in order to get an understanding of how the innovation might satisfy
their needs. We were wondering if your group would be a source for contacting
anyone willing to participate in this study. All information gained would be
considered strictly confidential.
Your help is greatly appreciated.
Thanks.
Ray
IMPORTANT: This group is not intended to take the place of your health care professional. If you or your loved one suspect migraine, your first step is a diagnosis by a competent physician.
Do not begin, stop, increase, or decrease any medication without first consulting your doctor.
Please do not take any prescription medication not prescribed for you by your physician.
This group is for information and support purposes only
about migraine support group
This group is here for the support of people that suffer from migraine or have loved ones that suffer from migraines.
Please come in and share with us your stories, your tears, your triumphs. What are your triggers, what helps, what doesn't.
my favorite migraine sites (posted Apr. 5, 2009)
mayo clinic article (posted Apr. 5, 2009)
my migraine story (posted Apr. 4, 2009)
ncmomof3 created a group image gallery.
migraine drawings
Apr. 3, 2009
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GOLO member since July 20, 2007
April 4, 2009 7:52 p.m.
GOLO member since May 9, 2008
April 4, 2009 9:37 p.m.
I have so many different types, like I said in my blog above, and some I have warning signs with but some I dont. Does anyone else have that? Just walking along, minding your own business, then WHAM, it's like someone blindsided you with a baseball bat?
GOLO member since July 20, 2007
April 5, 2009 9:00 a.m.
It really feels like you have been beaten for days afterwards sometimes.
My doctors thought there may be a connection with my light and tone sensitivity...or my eratic sleep patterns. The sleep...or lack there of is what they're/I'm concentrating on most now.
GOLO member since April 8, 2008
April 5, 2009 2:04 p.m.
GOLO member since February 14, 2008
April 5, 2009 2:17 p.m.
People that suffer from migraines need to be on a schedule. I have found, for myself, to deviate too far from that schedule is bad news.
If I don't eat a little something every few hours, I'll get a migraine. If I don't eat when I first feel hungry, then it's too late. I can not push off my hunger. This is one I am bad for. I'll feel the twinge, not be in a good place to eat, and ignore the twinge. Next thing I know, I'm no longer hungry in the slightest, and I've thrown myself into a migraine
GOLO member since July 20, 2007
April 5, 2009 2:33 p.m.
GOLO member since March 6, 2008
April 5, 2009 2:35 p.m.
GOLO member since July 20, 2007
April 5, 2009 2:45 p.m.
At least it doesn't happen so frequently for me anymore. My heart goes out those those that go through these often. Between all the injuries, broken bones, ect...non come close to the level of crippling or pain as what these things cause.
GOLO member since April 8, 2008
April 5, 2009 2:46 p.m.
GOLO member since July 20, 2007
April 5, 2009 2:53 p.m.
I have multiple triggers, and because I also deal with insomnia/nocturia, sleep or a lack thereof doesn't seem to be one of them.
I also get the squiggly lines without the pain sometimes, but those don't accompany or begin every single migraine.
God bless.
RB
GOLO member since July 2, 2007
April 5, 2009 4:14 p.m.
GOLO member since May 9, 2008
April 5, 2009 7:58 p.m.
April 5, 2009 8:26 p.m.
...Mom, give me his name and phone number, so I can call him and tell him what a jerk he is!!
April 5, 2009 8:30 p.m.
I'm glad your's is gone, Shoe, I battled one all weekend, hence the group idea. I went to church and struggled through the piano playing, messed the 2nd song up pretty badly and went to bed at 3 when hubby got up to go to work and didn't get up til this morning. Not sure if it is gone or not. My head is so sore
GOLO member since July 20, 2007
April 6, 2009 7:08 a.m.
April 6, 2009 10:17 a.m.
GOLO member since July 20, 2007
April 6, 2009 11:38 a.m.
GOLO member since December 14, 2007
April 6, 2009 2:52 p.m.
started taking topomax in february. at first, thought maybe i haven't been taking it long enough, but surely, by now, i should see some type of difference, other than my feet and hands tingling and the bad taste of a coke now!
imitrex now does nothing for me any longer either except makes me feel as if my throat is closing shut on my. and makes me feel like i got a sunburn, been taking it for about a year, it's just started to have such an effect (sunburn feeling) over past month... don't know why either...
percocet is like eating candy
relpax is a joke
anyone experienced with treximet?
GOLO member since December 14, 2007
April 6, 2009 2:59 p.m.
Not a member, or a sufferer, but I wanted to drop in and say that I think this is great! I have had many special people, even a child, in my life that suffered from these horrid migraines.
I hope that there will one day be a wonderful discover that ends this....
Has anyone ever tried antidepressants for prevention/maintenance? I took my stepson, just before me and his dad divorced, over eight years ago, to be examined as a possible candidate for an antidepressant that could potentially stop his migraines. Once they started, he couldn't take a thing to stop them, b/c of the nausea. I always wondered if that treatment panned out. Don't remember the name of it.
I do know that is one of the worst pains I have ever witnessed a person experience, and not be able to do a single solitary thing to make them feel better.
GOLO member since July 16, 2008
April 6, 2009 7:33 p.m.
GOLO member since July 20, 2007
April 7, 2009 7:44 a.m.
GOLO member since July 20, 2007
April 7, 2009 7:45 a.m.
GOLO member since October 26, 2007
April 7, 2009 9:00 a.m.
GOLO member since July 20, 2007
April 7, 2009 9:26 a.m.
my son got them quite often around the ages of 11 - 15 he would throw up and feel better.
i can say that i do not get nausea- only once, which was last week. i sure hope i do not have that - i should feel blessed not to have that on top of the head aches, huh?
mom, did i say thank you for creating this group. if not, then let me now. this is wonderful. when i get time, i'm gonna check out the links you have. thanks again. i'm sure i'll be a frequent visitor.
GOLO member since December 14, 2007
April 7, 2009 9:38 a.m.
GOLO member since October 26, 2007
April 7, 2009 10:04 a.m.
I took Amitryptilene (elavil), inderal, and a bunch of others along the same line. None worked well for me at all. With the motrin for your son, have him drink a caffeinated beverage and take a benadryl (to help him sleep) and see if that helps relieve the pain quicker.
You're welcome, Wife, I have been thinking about it for awhile but didn't know if I could set a group up or not or even if it would get much support but after this weekend of pain, I figured if it helped just one person it would be worth it
GOLO member since July 20, 2007
April 7, 2009 11:34 a.m.
April 7, 2009 5:27 p.m.
GOLO member since July 20, 2007
April 7, 2009 7:55 p.m.
My migraines are food and weather triggered. I've been able to identify most of the foods, chocolate, tea, yellow cheese, nuts, red wine and to much coffee. I have been able to substitute green tea for my coffee. Any foods with preservitives (sp) or MSG are a big no-no.
The weather related problems are harder to predict. Last week with that big low pressure system that gave us all that rain was really rough.
My neurologist has me on Topamax daily and Imitrex for outbreaks.
GOLO member since August 13, 2009
April 8, 2009 3:48 p.m.
GOLO member since July 20, 2007
April 8, 2009 5:07 p.m.
Pizza and any other commercially prepared food I have to be cautious of due to the preservatives like MSG. Yes, I Love pizza it just doesn't love me back.
My son has the same migraine problems and being away at college has a tough time eating cafeteria food. This is one of the reasons I raise free range chickens and grass fed no hormones beef. I'm experimenting with free range pigs, and have friends with natural buffalo.
GOLO member since August 13, 2009
April 9, 2009 8:25 a.m.
GOLO member since July 20, 2007
April 11, 2009 9:45 a.m.
Have you considered food triggers as a cause I reduced my frequency by 60% when I identified mine. This may sound strange but bio-feedback and and pressure points have also helped me.
Anyway off to the barn my daughter needs to ride her horse and mine today. I gotta check on things after last night.
GOLO member since August 13, 2009
April 11, 2009 12:43 p.m.
Enjoy the horseriding
GOLO member since July 20, 2007
April 11, 2009 3:48 p.m.
Wow, I've never heard of that before, ever. Everybody I know, theirs is a progressive thing.....That would have scared the beejeebers out of me...Pain is pain, it all hurts....I'm sorry for yours girl....
April 11, 2009 6:16 p.m.
GOLO member since July 20, 2007
April 11, 2009 7:50 p.m.
GOLO member since August 2, 2007
April 14, 2009 7:34 p.m.
I hope you feel better soon, SD,,,I really really really hate these things
GOLO member since July 20, 2007
April 14, 2009 10:23 p.m.
oxycodone is my friend, is my friend, is my friend....
GOLO member since August 2, 2007
April 15, 2009 8:59 a.m.
Someone got a bullet?
GOLO member since July 20, 2007
April 15, 2009 9:47 a.m.
GOLO member since August 2, 2007
April 15, 2009 12:06 p.m.
Before I went to the doc about them, I was taking 4 Ibus every 4hrs as well as 2 BCs to try to calm them down. Some times it worked and sometimes had to wait 16 hrs before it quit. Doc told me not to take BC stuff with the Florinal, so I'm giving the big box I bought away.
mainly storms (low pressure) is what brings mine on.
GOLO member since March 6, 2008
April 16, 2009 8:41 p.m.
GOLO member since August 13, 2009
April 16, 2009 9:29 p.m.
the pressure point thing works, for me it's in the bottom of my feet. I love my hubby because he will tirelessly rub my feet when I have a headache.
Also, if you get 2 black nylon socks, they must be black nylon,,and 2 tennis balls. place the tennis balls inside the first sock, tie off. place the first sock inside the 2nd sock, tie off. Place the sock at the base of your skull and lay down. There is a pressure point there. Sometimes that will help
GOLO member since July 20, 2007
April 16, 2009 11:12 p.m.
GOLO member since March 6, 2008
April 17, 2009 1:05 a.m.
NM,,with the imitrex/relpax/etc type meds, the key is to take just as soon as you feel one coming on and then to take the 2nd dose if it's not 110% gone just as soon as the prescription says you can.
Check out some of the links I posted in one of the blogs, there is some great info there.
Also, for those that are relatively new to migraines, a headache dairy is a MUST. If you do not identify as many triggers as possible and any kind of pattern, it'll just get worse and you're just setting yourself up for unnecessary pain. and I mean write EVERYTHING down, every little detail of your day, no matter how unimportant
GOLO member since July 20, 2007
April 17, 2009 6:53 a.m.
GOLO member since March 6, 2008
April 17, 2009 9:06 a.m.
GOLO member since March 6, 2008
April 17, 2009 9:07 a.m.
Monkey...are you seeing a neurologist. They have helped me more than any other Dr
GOLO member since August 13, 2009
April 17, 2009 9:56 a.m.
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