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migraine support group: profile ↓

migraine support group


created: Apr. 3, 2009

golo url: migrainesupport.golo.com

members: 18

group owner: NCMOMof3 | Contact

membership: open

[
announcement
]

 

 

 

 

I received this email and was asked to forward it to the group.  I am posting it here for your information.  Please use your individual discretion as I am in no way vouching for this individual.  I am just passing on the information.  Please do your own research and participate as you feel comfortable. 

 

here is the email:

 From:             Ray <rpmccorm@ncsu.edu>
Screenname:       rpmccorm
Message:
  I am an MBA student at NCSU working on a team project focusing on an
innovative form for treating migraines.  We need to interview 10-15 migraine
sufferers in order to get an understanding of how the innovation might satisfy
their needs.  We were wondering if your group would be a source for contacting
anyone willing to participate in this study.  All information gained would be
considered strictly confidential.

Your help is greatly appreciated.

Thanks.

Ray

 

 

 

 

IMPORTANT:  This group is not intended to take the place of your health care professional.  If you or your loved one suspect migraine, your first step is a diagnosis by a competent physician.

Do not begin, stop, increase, or decrease any medication without first consulting your doctor.

Please do not take any prescription medication not prescribed for you by your physician.

This group is for information and support purposes only


about migraine support group

This group is here for the support of people that suffer from migraine or have loved ones that suffer from migraines. 

Please come in and share with us your stories, your tears, your triumphs.  What are your triggers, what helps, what doesn't.   

 






sleepyeyez

tux

NCMOMof3

kewlmom

Hilikus




my favorite migraine sites (posted Apr. 5, 2009)
mayo clinic article (posted Apr. 5, 2009)
my migraine story (posted Apr. 4, 2009)


ncmomof3 created a group image gallery.
migraine drawings
Apr. 3, 2009

182 Lifetime Comments *

* Some comments may have been deleted

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lol, Wife, I hear ya. It's not so much changing the routine as it is finding the time to actually go to bed when a migraine hits. I just don't really have that kind of time because they hit so ofte. But he explained that by not taking the time, I'm setting myself up for failure. So I guess it's a catch 22. I either take the time now to rest with each headache and, in doing so, have less headache, or keep on going and have more and more, and have them last longer

either way, I'm screwed

I'm glad the inderal is working, that's great!!!!!

hey mom- the inderal seems to be working well. i am taking 80mg a day. whereas i was taking 200 topomax and it did nothing...

you really MUST try and change your routine, if just a little, just enough to allow yourself SOME of the rest that you need!!! do you hear me talking or do i need to shout? :)) take care...

wife, how is the inderal working for you? The doc is holding me at 150 on the topomax and instructed me that part of my problem appears to be that when I have a migraine I do not allow myself the time I need to rest. I am expecting to take a pill (the relpax) and have it work miracles. I take the pill and keep going. While the relpax will take the edge off and allow me to stay on my feet, it is not a miracle drug. With some migraines, I will need to still lay down until the headache is completely gone. By not doing so, I am setting myself up for a major headache, that will linger for days.

Instead, I work through it, lay down at night and then get back up in the mornings, still with the headache, take another relpax, work through my day, go to school, do homework, then go to back. I have placed myself in a vicious cycle.

yeah yeah,,and when is cloning going to be perfected?

wife, I hope it continues to work for you. I was on Inderal for a number of years. My body tends to build up a tolerance for meds after awhile

hey mom- hope you and everyone are doing well!!!

my doc finally sent me to a neurologist here in fayetteville- my topomax was not working- not even up to 300mg, the neurologist has now put me on inderal- which is an old blood pressure med., but has been proven to work for prevention of migraines- i think it may be working.... (knock on wood)--

Just wanted to let everyone know the group is still open. I check in here every few days. If anyone wants to vent, ask a question, whatever, please feel free to do so. This group is open to all, and there will be no drama here. Everyone is welcome

WEEKLY UPDATE: anyone else having trouble this week with migraine pain?

Shoe, this is the place to vent,,it's what this group was made for. I feel your pain. Hubby looked at me last night and told me he thought we were drifting away. I've had a headache for over a week. By the time I get through my day, all I want to do is just lay on the couch. I can't sleep really, just sort of drift in and out. So I just sort of lay on the couch, I have the computer, the tv, he's been working but was off last night, and wanted to go somewhere,,I just want to lay there. I think the meds are draining as well. It's the low pressure systems that are killing us.

THESE STORMS ARE KILLING ME!! I know we need the rain, but my head is truly gonna explode. I talked to my sister yesterday, she's having the same problems. I know I've got get thru it, and I'm not expecting a miracle...just wanna vent I guess. My meds work to a point....I hope the storms are gone for a few days anyway....I missed my nieces Sweet 16 last night because of a headache. She got a blk BMW!

All current members are able to do blogs. Any new members that join, will be given the ability to do blogs as well, give me a day or two. If new members will go back and read the blogs posted, there is some great information,,also the comments posted will provide some good information as well, some ways to treat migraines that may not be main stream. Things that have worked for some of us in here and things that have not.

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