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ms sucks: profile ↓

ms sucks


created: Sep 30, 2008

golo url: fightms.golo.com

members: 3

group owner: renesbmw | Contact

membership: open

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Here is the link to the local MS Chapter. There you can find info about MS, see stuff about upcoming seminars and fundraising events!

http://nct.nationalmssociety.org/site/PageServer?pagename=NCT_homepage

And a little of  my personal MS story:

http://www.wral.com/golo/blogpost/2773474/


about ms sucks

Multiple sclerosis (or MS) is a chronic, often disabling disease that attacks the central nervous system (CNS), which is made up of the brain, spinal cord, and optic nerves. Symptoms may be mild, such as numbness in the limbs, or severe, such as paralysis or loss of vision. The progress, severity, and specific symptoms of MS are unpredictable and vary from one person to another.

Although there has been much terrific research and advances in the treatment of this unpredictable disease, there still is NO CURE and unlike many other diseases there is nothing a person can do differently in their life to prevent having it.

This group is basically here for folks to listen and or talk about Multiple Sclerosis and its affects on those that have it and their families. Also it is a chance to learn about the disease and inform others of fundraising and/or learning seminars.  Just a place to sound off, learn and fight this crippling disease!






renesbmw

RainierBeer

Godschild43




Leukemia Drug May Help MS Sufferers (posted Oct 30, 2008)


renesbmw created a group blog post.
leukemia drug may help ms sufferers
Oct 30, 2008

renesbmw created a group image gallery.
ms walk '08 pics
Sep 30, 2008

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Don't know if there is anyone out there with MS or has a family member or friend with MS, or if you are just interested in learning about MS, please join the group! It helps to have others to talk with about it and support each other!

Don't have Ms interested in learning about it and supporting those that do.

Hi Rene, no I don't have it but I'll never forget this terrific woman at a convelescent center where I once worked that did. Comparing diseases is probably like comparing apples and oranges but nothing compared to this. And if it left me feeling so sad and scared, looking in from the outside, I just can't imagine what she may have felt. I would like to be more informed and fund-raising is right up my alley. I hope, too, that you've been well. :)

Thanks Patsy for joining the group!

My Sister has MS and it has taken a toll on her life. We were always close growing up and now is using a walker and has lost weight to the point that when she falls I'm afraid that she would break. I do agree it sucks and I hope one day that they find a cure.

thanks to you gingerleigh as well for joining the group! As for me, no matter how yucky I feel some days, I feel blessed-because MS has not ravaged my body like it has so many others. I pray that the doctors and the meds I am on can keep the progression at bay.

thanks for your imput, lambeau-is she able to take any of the disease modifying drugs? there are different ones that are catered more toward the type of MS a person develops. I wish her the best and as for you, check out the link to the local MS Society chapter- there are links at the top of that page that can give all kinds of info and guidance. God Bless you both and keep me posted? What is her name? I would like to put her on my little prayer list.

Her name is Debbie and she went through the period of trying every new drug that is out there. She has moments of true strength and more of pure weakness and set back.

You are welcome.I have worked with peoopl hat had or has MS.The mor we know about Ms the more understanding we have in helping others.

I will keep Debbie in my thoughts and prayers-I know that she has someone special in you to be supportive of her.

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