GOLO: Go Local. Talk Local. Share Local.
idareyou55: blog ↓

idareyou55's blog


doctors don't know why my baby daughter isn't getting any bigger

Published Feb. 3, 2009
Views: 253

Meet Suraya Brown – the little girl who is baffling doctors by refusing to grow.

The brown-eyed youngster is now 14-months-old and should weigh at least 20lb. Yet she is still the size of a newborn baby, tipping the scales at just over 7lb and a mere 19in.

Suraya has been examined by a whole team of specialists including paediatricians, nutritionists, geneticists and hormone experts.

But doctors say they still have no idea why she won’t grow – describing her condition as a “real conundrum”.

 

 

Mum Atlanta Ruzman, 24, said yesterday that her daughter was like a real-life baby doll.

She said: “The doctors haven’t got a clue what is wrong with her.

“They’ve consulted international experts about her case but her condition seems to be a complete mystery.

“She cannot sit, talk or crawl and she has to be fed through a tube to keep her alive. But she just hasn’t been putting on any weight.

“She is way behind other youngsters of her age and when they mark her growth chart they have to plot her off the graph. She is a just like a real-life doll. In fact my other daughter has a doll that is bigger than her.”

 

Suraya was born four weeks early weighing 2.6lb. But specialists say nine out of 10 babies born at this stage will immediately start growing and put on weight.

In Suraya’s case she stayed at her birth weight for the first eight months and has only put on a small amount over the past six.

Experts at various hospitals in London have carried out all kinds of tests on Suraya to find out what could be wrong with her. These have included checks to see whether she is suffering from some form of dwarfism.

But so far these have brought no positive results. Even being fed in hospital direct by tube failed to put on significant weight.

 

Her condition is in stark contrast to that of elder sister Akilah, who is two-and-a-half.

She was walking early at nine months of age and is now a big child for her age.

 

Atlanta, of Hayes, Middlesex, added: “Akilah is a huge child. Yet I still have to carry Suraya like a newborn baby the whole time.

“It’s very difficult because we don't know what the future holds for Suraya.

“But we are hoping the doctors will soon be able to find out and she will be able to live a normal life.” Suraya has now been admitted to

London’s renowned Great Ormond Street Hospital for three months for further tests.

Doctors will investigate a theory that her body has become resistant to its own growth hormones.

Consultant paediatrician Dr Jide Menakaya, who has known Suraya since birth, said: “She is a very interesting little baby.

“Her case is highly unusual. I have certainly never seen anything like this and I have been in paediatrics for nearly 17 years.

“A whole range of specialists have been involved in her care but she has been a real conundrum.

“The fact that she still did not grow after we put the feeding tube directly into her veins was unexpected and surprised us greatly.

“This is incredibly rare. We have run many tests but we haven’t had a firm reason as to why she is not growing.

“Now we are working on a theory  but more investigations need to be carried out.”

 

http://www.mirror.co.uk/news/top-stories/2009/02/01/doctors-don-t-know-why-my-baby-daughter-isn-t-getting-any-bigger-115875-21090438/

 

Filed under: News & Issues




15 Comments


Golo

Welcome to GOLO, where WRAL.com visitors can comment on stories and create profile pages, blogs and photo galleries.

You must be a registered WRAL.com user to use these tools. Click here to register or log in.

View Comments View Comments


page 1 | 2
<prev    next>
sort order: oldest first | newest first

Awww, poor angel. How can she be getting enough nutrients from her food to stay alive, but not to grow?

Praying mightily for her.

God bless.

Rev. RB

wow, poor thing!

she is beautiful...

Have docs ruled out a possible kidney link?

I have a second cousin in OH for e.g. who was born with a kidney defect ...kind of like what actor Gary Coleman has.

awww Poor baby I hope they find out whats wrong.

Poor little thing. I hope they find what is wrong soon.

I saw something close to this on a health channel, may have been the discovery channel.

The little girl was about 13 years old and only about 2 ft tall.

She was some sort of dwarf. I don't remember exact name.

I hope they can find out what is wrong with her. I hope they can fix it.

primordial dwarfism?

Now when I was coming up we had children who had trouble eating and just couldn't get started. here's what was done to cure them.

Take the sugar can and dip out a pile that looked like an ant hill and pour cold coffee over it. stir until it was paste like then feed it to the baby. It cured many a stomach problem and helped get small kids started. I doubt this would help the child in question but thought you might like to read it.

page 1 | 2
<prev    next>
sort order: oldest first | newest first

Please log in to add comment.

most recent
   blogs    galleries    profiles    groups    popular  

because he died from "suicide"

This is an interesting article from wsj.com   Do you think the president should ignore...

do you think adam lambert is stuck on himself.

He went wild with his sexual display on the AMAs Sunday night.  GMA has cancelled his appearance...

a few moments of levity for today

Muppets vs. Queen and Freddie Mercury...  I go with Muppets!    Have fun...

adam sandler wishing you a happy thanksgiving

This was the first blog I ever posted on here, and it seems about time for a re-post!  Happy (almost)...

spellcheck!!!!

Ya know, if you are going to be all "uppity" bout it, at least proof read. Smiles and buckets of liquid sunshine to you all this fine grey day!!

we will bite you . . .

. . . if that picture gets posted on the internet.  It's bad enough you make us wear this silly...

Generic Profile Image

welcome wagon

The Golo Welcome Wagon is available to support people who are new to the Golo community.  Do...

happy thanksgiving, golo!

Hello GOLO:  I just want to take a minute to wish all of you a happy Thanksgiving. Many...

Generic Profile Image

blessing advice

 I would like to get advice on what to say for the blessing.  I'm not one for ad libbing...

   blogs    galleries    profiles    groups    popular  

profile of cokacolasis

fry the child killers and rapist, do not let them lay up in prison for years and years, while we the taxpayers pay for the room and board. take my money and crank up sparky!

Generic Profile Image

profile of rangerdavid

Gun totin left wing liberal vegitarian

profile of faye prosser - smart shopper

My goal is to help everyone live more comfortably within their means. I love to spread the...

Generic Profile Image

profile of js_2

Too busy.

Generic Profile Image

profile of divamomof4

Happiness comes from within...

Generic Profile Image

profile of mdeans

I cannot believe a personal statement is required.

Generic Profile Image

profile of mzcole

Live, Laugh, and Love!!

Generic Profile Image

profile of michellerani2000

Hi my name is Michelle

Generic Profile Image

profile of themediator

I tell it like it is.

   blogs    galleries    profiles    groups    popular  

privately public (7 members)

A Public Group for Blogging for "Friends Only" profiles.   This group...

golo happy birthday club (26 members)

  1/8 - justafella  2/2 - sandlapper 2/9 - Sue Donym  2/10-Pom...

therustybucketkidsclub (3 members)

Fans of The Rusty Bucket Kids Club, as well as cast and crew share the fun and the joy the movie and music are bringing to the community.

the book club (17 members)

This group is for those that would like to get involved with monthly readings, or readings at your...

Generic Profile Image

veterans affairs-are you a vfw (2 members)

OK, lets hear from all our proud Veterans here in Golo land! What branch of service were/are...

unemployed goloers corporation (10 members)

The unemployed Goloers Corporation is a newly formed corporation that contains the skills of all people...

motivation for weight loss (4 members)

If you want to lose weight or have already lost the weight.. we need each other to inspire each other to reach the determined goal..

golo weight loss buddy group (9 members)

  This group is for anyone (male or female) interested in "buddying up" with...

crew the raccoon (1 member)

Fans, volunteers and freinds of the Peak City Film Festival in historic downtown Apex, NC, November 20, 21, 22  2009.  

Generic Profile Image

the throne of wisdom (12 members)

   blogs    galleries    profiles    groups    popular  

profile of yhwhoverptah

I don't believe in Atheists

Generic Profile Image

blessing advice

 I would like to get advice on what to say for the blessing.  I'm not one for ad libbing...

Generic Profile Image

calling all golo atheists: boycott thanksgiving

Attention my Golo Athiests friends and church/state separatists.  It has come to my attention...

former police officer charged with drug trafficking

  WHITEVILLE - A law enforcement veteran who...

happy thanksgiving, golo!

Hello GOLO:  I just want to take a minute to wish all of you a happy Thanksgiving. Many...

i am a cokaholic

MY name is Coka Smith I am a "COKAHOLIC". My family is so ashamed of this habit I have. I hide...

just a reminder

Today, all, I'm posting a personal blog. I know, I know. They suck and no one really wants to hear...

story of a great man

http://www.facebook.com/video/video.php?v=1116568005636&ref=mf  or...

which one is it??? you pick...

Merriam Webster online dictionary: “Rogue” 1) Function: noun 1 : vagrant,...