grenlyn1: blog 
grenlyn1's blog
duke pushing to achieve new psoriasis treatments
Published Apr. 30, 2008grenlyn1, could you be more specific? How do you know something will work if you don't test it????timbo
April 30, 2008 8:04 a.m.
Gee great..another "trial"..when will the doctors stop using a community who is already suffering so much in their experimental medicine. So far their track record hasn't been so good. grenlyn1
GOLO member since July 26, 2007
April 29, 2008 5:06 p.m.
*******yes Timbo, I would love to elaborate on my statement. My husband has psoriasis. He has had it most of his life. And NO TREATMENT experimental or otherwise has helped him. If anything, they have harmed him more then helped. The latest was Embrel. EVERY doctor in this area went on a rampage three years ago.. TAKE EMBREL..they said..no problems they said.. he has doctors yelling at him over refusing to take it. He gave in to them. Well, 18 months after treatment, his health went down hill. He suffered a heart attack, he is plagued with chronic pain, he wished he never saw the drug. He had one doctor state, "It's killing you". 18 months after discontinuing the treatment, he is still suffering. So yes, I have reason to be resentful of the "new treatments" available. This isn't the first time this happened. He was left with a level 3 liver toxicity through treatments given to him 20 years ago, 3rd degree burns over most of his body with UVA treatments, and irreversable side effects from psoritaine. He underwent several liver and kidney biopsies. He is the most resilient man I know and yet the medical community makes him feel like a guinea pig. He deserves much more than that. I agree with purpleado. The public needs to be educated more about this disease and the treatments. I encourage all of you to visit the site www.skinfire.org and order the free video tape called My Skins on Fire: Living with Psoriasis and see for yourself the lives in which people with this disease live. Once you watch it..you will realize it isn't as easy as a "new treatment"..and it isn't a quick fix. It lasts a lifetime. I will also ask if anyone wants to give to something worth while..please donate to the National Psoriasis Foundation..they have done more in educating the public than anyone else..including the pharmacutical companies. Thank you for your question Timbo. Lynette
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