Health Team

Father's one-legged run raises money for CF

Posted June 19, 2015

Father's Day celebrates the sacrifices that dads make for their children, sacrifices that can be extreme when that child has special medical needs.

Lane Hinnant, despite his own disability, showed just how far he'd go for his daughters by running a 5K on crutches, with one leg tied up.

Lane and Melissa Hinnant noticed that something was not right with their daughter, Angelina, when she was just 18 months old.

"All of the sudden, she was almost turning blue and choking and couldn't breathe," Melissa Hinnant said.

It took four months and different doctors until Angelina was finally diagnosed with cystic fibrosis. The Hinnants learned, too, that CF is a genetic disease. Lane is a carrier, and their second daughter, Alaina, was diagnosed at birth.

The girls take piles of pills. Their medications include enzymes to help them digest foods.

They also have vest and breathing treatments several times a day for 30 minutes at a time to loosen up thick mucus in their airways.

Both parents are involved with the Cystic Fibrosis Foundation and participate in fundraisers like annual 5K events.

But a few years ago, stress fractures made it look like Lane Hinnant wouldn't be able to run.

He decided to do the 5K on crutches and alerted Guinness Book of World Records officials, who required one leg to be tied up. He completed the course under the required time and attracted many donors.

"We raised over $6,000 through that effort, so that was a lot of fun," he said.

Angelina Hinnant has started on a new gene therapy drug for cystic fibrosis called Kalydeco which her parents say has helped her get over cold viruses quicker and with fewer hospital stays.

For Father's Day, Lane Hinnant hopes for news that his youngest daughter will get on the drug soon.


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